Archives for February 10, 2010

Not Easy to Be Real-Life Sleeping Beauty #medicaldisorder #KleineLevin

This has to be one of the most incredible things I’ve ever heard of: Lousia Ball is a normal blonde, British 15-year old girl in every way except one – she sleep for days at a time and cannot be awaken.

Suffering from Kleine-Levin Syndrome, also called Sleeping Beauty Sickness, Louisa has a disease to which there is no cure. Some cases have cleared up after eight to twelve years of suffering. Other cases have had the disease go away completely (or so people think) and then come back later in life.

Louisa’s longest ‘nap’ has been for 13 days! There is nothing doctors can do to stop it.

Can you imagine trying to deal with something like this when going to school? university? even if you have a full-time job?

Since there is no control over it either, can you just imagine going on your honeymoon and falling into one of these fits? Wedding day or other important event?

The disease is very inconsistent too, one episode can happen and the next up to months later.

Louisa is basically is missing a third of her life to sleep. This is an extremely rare disease and there are only about 1,000 known cases in the world. wow.

Poor girl. 🙁

This is one case where one princess scenario is not what you want and a handsome prince cannot help.

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Sasha Muradali runs the ‘Little Pink Book’ . She holds a B.S. in Public Relations from the University of Florida with a minor in Dance (’07) and an M.A. in International Administration from the University of Miami (’08). She loves Twitter and all things social media, so you should find her @SashaHalima or get a copy of the ‘Little Pink Book’ delivered to your Kindle.

Copyright © 2009-2010 Sasha H. Muradali. All Rights Reserved.

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